Tuesday, 16 August 2016

Relief!!!!! 🙃

For a week now I have had much lower pain and the terrible stabbing, pulling pain rarely happens. 
On Saturday a week and a half ago, in desperation, I left my stim on a setting I hadn't tried for long before. It is the 10th setting which is a burst one, so I can't feel it and I turned it down 20-30%, as recommended. At the time I didn't feel anything helpful but I decided to leave it on just to see.
It wasn't until the Tuesday that I noticed some relief. To start with I could do things that would normally have meant added pain, but it didn't. I also noticed that my scalp was really tender and overly sensitive.

Friday, 5 August 2016

What is going on..????

The past few weeks have been a bit crazy and I just haven't found the chance to update my blog.
Two weeks ago I was in so much pain and couldn't even put my chin to my chest without severe pain that caused me to shout out. This is not like me and as it was worse than it had been and I just couldn't find a way to get rid of the constant awful ache either, I gave in and called to doctors. They called me on to see me and although they were mainly worried about infection but there weren't any signs of this, they still said I needed to do to A&E to get seen by a neurosurgeon.
I really didn't want to go, as I know they won't do anything and it would be a waste of time but the promise of fish & chips by my boyfriend once we have been, encouraged me to go anyway!!

They took everything seriously at the hospital and eventually a nurse managed to get a neurosurgeon down to see me. He said he had no idea what was cause the added pain, gave me nothing and sent me on my way, saying he will email my consultant to let him know about the pain. He suggested I contact his secretary if I don't hear anything early the next week.
So as I thought......all a waste of time!
I actually can't believe you can be sent away without any treatment or support!!!!

An of course, I never did hear from my consultant or anyone else! 😔

So over the past few week the pain as lessens slightly but got worse again too. I seem to get a pulling, tight feeling when i look down or turn my head left. This happens a lot when I wash my face, eat or bend down to get something.
It is really debilitating and difficult to cope with. I have lost count of the times that I have been in so much pain, I shout. This had been around friends too which I had always managed to disguise until now.

I have tried my stimulator a few times over these couple of weeks. Sometimes it has been so distracting or felt like it was stabbing me or sending shooting pains so I turned it off again.
I have now begun a few days worst of using a burst program that seems to be manageable. I obviously don't feel any sensations to be annoying but it seems to have lowered the constant dull pain. I think it may have caused a wider numb area at the back of my head but I guess that's better than pain.

So I will just see how this continues.