tag:blogger.com,1999:blog-2662549628993353043.comments2021-03-03T20:54:29.161-08:00My Occipital Neuralgia Journeyunluckygalhttp://www.blogger.com/profile/07753449841310485188noreply@blogger.comBlogger55125tag:blogger.com,1999:blog-2662549628993353043.post-27129519688822856202021-03-03T20:54:29.161-08:002021-03-03T20:54:29.161-08:00My little princess is so beautiful) I underwent us...My little princess is so beautiful) I underwent using Dr Itua Herbal Medicine. I had a miscarriage 7 years ago. I still can’t hold back my tears when I remember that horrible period of my life. After my loss I couldn’t get back to life for a long time. I’m glad I have my husband. He gave me support I needed the most. Together we can do everything! We wanted to have kids for a really long time. We’ve gone through a lot, but if you want something badly, you’ll get it! I had to search online on how i can use herbal remedy due to my infertility then i came across Dr Itua how he cure all kind diseases and helped a lady from Kansas City to get pregnant so i contacted him on email,He gave me some guild lines to follow he also send me his herbal medicine via courier service which he instruct me on how to drink it for two weeks really i did and after 7 days of having intercourse with my husband few days later i noticed my period didn't come then i decided to go for check up i was pregnant with a baby,Dr Itua is a genuine miracle man..I've got pregnant from first attempt. We were over the moon! Our girls were born in May 2015. We've just celebrated their first birthday. Finally joy and peace came to our family.Here his Email/Whatsapp Number...+2348149277967/ drituaherbalcenter@gmail.com He cure the following...infertility Liver/kidney Inflammatory,Diabetis,Herpes Virus, Lupus, HPV, Cancer, Hiv/Aids, Hepatitis, Als, MS, Menstrual Cramp, Fribroid.<br />Kate Louishttps://www.blogger.com/profile/10913270363859967783noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-34040840356889484852020-01-16T03:39:53.162-08:002020-01-16T03:39:53.162-08:00Hi unluckygal, I read your post "How it all b...Hi unluckygal, I read your post "How it all began!" <br />Many years ago I had the same type of car accident, hit by a drunk driver when I was stationary in traffic. My life changed forever. I had 5 years of unsuccessful treatment and intense pain until finally a new neurosurgeon found the cause of my occipital neuralgia and operated. My left greater occipital nerve had been crushed at the C2/C3. I'm fine now and only have minor residual pain. I'm happy to share my story.<br />Email: v24194@gmail.comVRhttps://www.blogger.com/profile/06593510763277069629noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-20941173566688197862019-11-15T10:44:54.517-08:002019-11-15T10:44:54.517-08:00Thanks for updating! Happy to hear youre in a bett...Thanks for updating! Happy to hear youre in a better place. Obv youre not cured, but all the same, youre clearly doing better. <br />Big part of it seems to be distraction. I can understand that with chronic pain, it becomes all you can focus on (understandably) and magnifies it. Now being a new mum (congratulations) you have much bigger things to focus on, so the ON takes a backseat. <br />Also, its so interesting you say the hormones of pregnancy help with pain. I have a cousin who has bad stomach issues, and everytime shes pregnant, they vanish. They now have 5 kids. lol. Not a sustainable treatment plan to just stay permanently pregnant, but very interesting. Anonymoushttps://www.blogger.com/profile/02411053758028740439noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-40602664535213721092019-08-30T02:21:58.773-07:002019-08-30T02:21:58.773-07:00Hi. Sorry I stopped updating the blog, but the app...Hi. Sorry I stopped updating the blog, but the app isn't supported by Apple so is a lot harder for me to get onto it now.<br /><br />I will do an update now, although there is a lot to put on there!!<br /><br />Wishing you well and thanks so much for following my blog.unluckygalhttps://www.blogger.com/profile/07753449841310485188noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-42336200715651709312019-06-26T18:43:11.075-07:002019-06-26T18:43:11.075-07:00Hey how are you? Been a long time. Im also battlin...Hey how are you? Been a long time. Im also battling ON. I found your blog and wanted to know how youre doing, 2 years on Anonymoushttps://www.blogger.com/profile/02411053758028740439noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-27476803518488012442019-01-10T13:34:09.187-08:002019-01-10T13:34:09.187-08:00This comment has been removed by the author.BluEyedGrlhttps://www.blogger.com/profile/03895042318630113326noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-78864706698587457042018-04-09T03:25:02.695-07:002018-04-09T03:25:02.695-07:00Hi I have always had periods of migraine since you...Hi I have always had periods of migraine since young however I had menstrual problems 7 years ago and ended up on pill to regulate bleeding it was then I started the headaches behind right eye and back of right side neck during pill break and several days after retaking until I guess hormone level rebuilds itself. I've not had it diagnosed and treat with paracetamol which can take the whole day of taking to ease it. You are not alone with this and I dread my pill break so I usually only have pill break every 2 months sometimes 3 on doctors advice several years ago and only a 4 day break not 7 which is usually enough for withdrawal bleeding to startAnonymoushttps://www.blogger.com/profile/10963613593532910764noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-53136981378915760212017-06-25T04:27:32.143-07:002017-06-25T04:27:32.143-07:00So sorry about your story. Especially that you hav...So sorry about your story. Especially that you have had to leave teaching. ON very difficult. My mom has this. We do many interventions and will prob do injections. I'm a hypnotist and have done hypnosis with her, but we are so emotionally close, it is not as effective. Hypnosis is a great intervention for pain. How are you now? Is your insurance taking care of your issues? Hope life is better and you are able to "teach" in other ways. I'm in Pennsylvania, USA. Best! mesmereyesuhttps://www.blogger.com/profile/08834504684195255998noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-31419073182696889062016-12-21T03:41:37.285-08:002016-12-21T03:41:37.285-08:00Hi Valerie. I really appreciate that you have cont...Hi Valerie. I really appreciate that you have contacted me about this. I hope you are ok. I would definitely suggest seeking a referral to a neurologist or neurosurgeon to get a proper diagnosis.<br />In terms of the link to worsened pain and my menstrual cycle, I still suffer worsened pain the day after it starts but not during every break from the contraceptive pill. It is most times but occasionally I don't experience worsening pain. <br />I haven't found out any more information as such, but do know that the pain increase is to do with lack of hormones that somehow help control the pain. <br />Taking the contraceptive pill, I guess it takes about 5 days for my body to lack the level of hormones that help me. I still fear what this will mean when I come off them altogether but I won't know until then, so I won't worry about it.<br />All the best with everything.unluckygalhttps://www.blogger.com/profile/07753449841310485188noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-14879897646599226162016-12-17T18:41:05.728-08:002016-12-17T18:41:05.728-08:00Hi,
I am more recently looking into Occipital Neu...Hi, <br />I am more recently looking into Occipital Neuralgia. I have never heard of it until recently but am wondering if I may have this. I have had chronic headaches and migraines for nearly 20 years now. I also have done much tracking and data collection to try to figure out a correlation. My best (but again, not always true) seems to be that they are much worse when I start my period. Being on a birthday control pill has helped me but I still get pain a lot. I see you posted this a lot time ago so I was just wondering if you found out any other information since you made this blog post. I know you aren't a doctor, but just thought I would ask as I am trying to gather some information before speaking with my doctor. Thanks! Anonymoushttps://www.blogger.com/profile/17114106581356119328noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-79414850857892489552016-08-26T11:40:50.165-07:002016-08-26T11:40:50.165-07:00I've just come across your blog; I hope you ar...I've just come across your blog; I hope you are still geting some relief. I've been researching occipital nerve as I think this is what I've been dealing with for about 20 years. I've spent a fortune on chiropractic, accupuncture and massage. It's constant, never ending and dibilitating and is getting worse. It's a balance between this, work, fibro and everyday stressors. <br />Anonymoushttps://www.blogger.com/profile/11554600271323194286noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-14442357203984550532016-07-10T18:08:50.994-07:002016-07-10T18:08:50.994-07:00Completely understood. Just wanted to make sure yo...Completely understood. Just wanted to make sure you got the information. Good luck in your recovery. Your blog is an important resource, and I appreciate the effort it must, at times, take to write it. Best - KevinAnonymoushttps://www.blogger.com/profile/09173724006725028906noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-36082508195394565862016-07-10T09:40:58.695-07:002016-07-10T09:40:58.695-07:00Hi. I did reply to your comment, but from the orig...Hi. I did reply to your comment, but from the original December post.<br />As you can see, I am recovering from the surgery still so this will hopefully be what I need. Also a change in life and work is going to help me find a way to manage better in the future.<br />As you can respectfully understand, things work very differently here in the UK, so it is not as simple as it may be for you to get to try something that is frowned upon and has so many warnings against.<br />As you may have come across, I also dislike taking medications and often has reactions to them or feel horrid in taking them. I would prefer to find a method to ease my pain that doesn't involve taking drugs.<br />I appreciate you keeping up with my blog and taking the time to support me.unluckygalhttps://www.blogger.com/profile/07753449841310485188noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-37346858790635792712016-07-10T08:21:30.794-07:002016-07-10T08:21:30.794-07:00Wondering if you saw my two comments in April? Kev...Wondering if you saw my two comments in April? KevinAnonymoushttps://www.blogger.com/profile/09173724006725028906noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-10704678121727163222016-06-25T01:14:09.194-07:002016-06-25T01:14:09.194-07:00Your feedback & updates really helps! Tks for ...Your feedback & updates really helps! Tks for sharing! ��tehmonicahttps://www.blogger.com/profile/12997372152891756341noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-9586216744109068252016-06-25T01:13:47.333-07:002016-06-25T01:13:47.333-07:00Your feedback & updates really helps! Tks for ...Your feedback & updates really helps! Tks for sharing! ��tehmonicahttps://www.blogger.com/profile/12997372152891756341noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-16396638768436579722016-04-26T16:42:03.797-07:002016-04-26T16:42:03.797-07:00Two additional points regarding taking prednisone....Two additional points regarding taking prednisone. I take calcium/Vit D supplements daily to lower risk of bone loss. Also... a disclaimer... I'm just a patient trying to find a way out of the nightmare that occipital neuralgia can be. I'm obviously not a medical professional and I only pursue treatments that my physicians recommend. So please take my comments not as advice, but as a starting point for a conversation with your own physicians and advisors. Anonymoushttps://www.blogger.com/profile/09173724006725028906noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-39745351235873110172016-04-22T07:19:02.276-07:002016-04-22T07:19:02.276-07:00Dear unluckygal,
(Sry - I mistakenly posted this...Dear unluckygal, <br /><br />(Sry - I mistakenly posted this under your Dec. 2016 post, so I have cut and pasted it here where it belongs)... My name is Kevin and I live in Chicago. I have occipital neuralgia starting very mild in 2004 but becoming disabling in 2010, causing me to leave a career that I loved as a Director of Research & Development for a large electronic communications company. I have recently found your blog, but I am only at August of 2014 in my reading. However, I jumped ahead to this most recent entry to see how you were doing. Not so good, I see. So sorry. Your too young to be suffering so. I had frightening symptoms very similar to yours', but have been able to get them somewhat under control. I have had over 100 needle-based procedures since 2004 (most having been done since 2010. <br /><br />You sound so desperate, and as I have been there, I wanted to make a quick suggestion that has been very effective for me. Twice each week I take 30 mg of prednisone (three 10 mg tablets, also very cheap, < $10). Anywhere from 8 to 24 hours later my pain is cut in half for about 24 - 36 hours. It is a powerful anti-inflammatory, and presumably reduces inflammation around the C2 & C3 nerve ganglion, bringing pretty remarkable relief, at least for me, and I so hope for you. Knowing that I have this source of relief available is very calming for my outlook on life. And there is flexibility regarding the days that I take it, which allows me to time it to be "good" for important events. I would think you could take it on Sunday to get you good for Monday/Tuesday at school, and Wednesday to get you through the rest of the school week. <br /><br />You will need to see a rheumatologist to get a script written. Most medical professionals have a knee-jerk reaction about taking prednisone on an ongoing basis, and recommend against it. And you will read all kinds of warnings about it, but my Rheumatologist tells me that 60 mg per week is very low dose and he has had rheumatoid arthritis patients on it for decades without issue at this dose. You'll need to get a bone "dexiscan" when you begin taking it to establish a bone density benchmark that is repeated every two years. This is like getting an MRI. I know that your government provided medicine is realIy screwed up w.r.t. getting new procedures done, but this test is important. I have been on prednisone for 3 years with zero change in bone density (that's good, because bone loss is the main concern). Medical people may push back on this, but hell, they can't understand what it's like, can they? It's like I no longer fear dying because at least the pain would stop. That said, I plan to make a 100 yr because I have two beautiful daughters and and an amazing wife ;^) I was glad to read that you have a boyfriend... ON is too difficult and isolating to face alone. If you are interested in discussing this offline by email I'm sure that we can find a way to exchange emails. I have another medical suggestion that might help you. Empathetically Yours, KevinAnonymoushttps://www.blogger.com/profile/09173724006725028906noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-6900681805826052512016-04-21T08:41:13.162-07:002016-04-21T08:41:13.162-07:00Thanks Kevin. I really appreciate all your thought...Thanks Kevin. I really appreciate all your thoughts and advise. Nice of you to take the time to fill me in on your own situation and I am sorry you have had to leave your job previously. <br />As I am awaiting surgery for the implant to be replaced and therefore it should work as intended, I will wait and give that a chance first. However, if I need to know more in the future, I appreciate that you would be willing to explain more about the Prednisone medication.<br />I hope things are still good for you. Take care.<br />I am so pleased my blog has taken your interest. Enjoy.unluckygalhttps://www.blogger.com/profile/07753449841310485188noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-50391893257473015482016-04-19T07:51:37.171-07:002016-04-19T07:51:37.171-07:00Dear unluckygal,
My name is Kevin and I live in ...Dear unluckygal, <br /><br />My name is Kevin and I live in Chicago. I have occipital neuralgia starting very mild in 2004 but becoming disabling in 2010, causing me to leave a career that I loved as a Director of Research & Development for a large electronic communications company.I have recently found your blog, but I am only at August of 2014 in my reading. However, I jumped ahead to this most recent entry to see how you were doing. Not so good, I see. I had frightening symptoms very similar to yours', but have been able to get them somewhat under control. I have had over 100 needle-based procedures since 2004 (most having been done since 2010. <br /><br />You sound so desperate, and as I have been there, I wanted to make a quick suggestion that has been very effective for me. Twice each week I take 30 mg of prednisone (three 10 mg tablets, also very cheap, < $10). Anywhere from 8 to 24 hours later my pain is cut in half for about 24 - 36 hours. It is a powerful anti-inflammatory, and presumably reduces inflammation around the C2 & C3 nerve ganglion, bringing pretty remarkable relief, at least for me. Knowing that I have this source of relief available is very calming for my outlook on life. And there is flexibility regarding the days that I take it, which allows me to time it to be "good" for important events. I would think you could take it on Sunday to get you good for Monday/Tuesday at school, and Wednesday to get you through the rest of the school week. <br /><br />You will need to see a rheumatologist to get a script written. Most medical professionals have a knee-jerk reaction about taking prednisone on an ongoing basis, and recommend against it. And you will read all kinds of warnings about it, but my Rheumatologist tells me that 60 mg per week is very low dose and he has had rheumatoit arthritis patients on it for decades without issue at this dose. You'l need to get a bone "dexiscan" when you begin taking it to establish a bone density benchmark that is repeated every two years. I have been on it for 3 years with zero change in bone density. If you are interested in discussing this offline by email I'm sure that we can find a way to exchange emails. Empathetically Yours, KevinAnonymoushttps://www.blogger.com/profile/09173724006725028906noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-67739208919739989792016-02-15T16:31:57.544-08:002016-02-15T16:31:57.544-08:00I've been contemplating this surgery. Either t...I've been contemplating this surgery. Either the internal tens or the excision of the nerves. I have 15+ migraines a month and they kill my right eye. I hope you get relief soon. It's not easy to make these life changing decisions and when something we do to help ourselves doesn't work it's maddening. Angelina Krellhttps://www.blogger.com/profile/14595775318073110779noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-73236407650103809882016-01-19T08:48:29.255-08:002016-01-19T08:48:29.255-08:00Thank you. I don't feel very brave and am sure...Thank you. I don't feel very brave and am sure the stress has massive impact on my ON. <br />I am pretty good at keeping busy and finding a purpose to life, so no doubt I would be less depressed at home! unluckygalhttps://www.blogger.com/profile/07753449841310485188noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-82947478599633223902016-01-19T08:46:10.279-08:002016-01-19T08:46:10.279-08:00Thank you for your thoughts. I appreciate that you...Thank you for your thoughts. I appreciate that you have taken the time to respond.<br />I just write it as I feel it, so it's a true moment captured. unluckygalhttps://www.blogger.com/profile/07753449841310485188noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-28026326694321020582016-01-16T11:45:44.660-08:002016-01-16T11:45:44.660-08:00It was thoughtless of the school not to discuss th...It was thoughtless of the school not to discuss things with you. You are right about having the support of your GP. Life is hard without their understanding. <br />I wish you luck with the consultant. <br />You write your feelings very well. I feel for you. Brenda Whttps://www.blogger.com/profile/08494192256381012143noreply@blogger.comtag:blogger.com,1999:blog-2662549628993353043.post-83563895214176570892016-01-16T11:40:09.463-08:002016-01-16T11:40:09.463-08:00Thus all sounds so distressing. You are very brave...Thus all sounds so distressing. You are very brave to continue working yet staying home with the pain might be more depressing. I look forward to reading how you resolve this x situation. Brenda Whttps://www.blogger.com/profile/08494192256381012143noreply@blogger.com