Tuesday, 22 October 2013

Next plan

After seeing my consultant neurosurgeon the other day, it seems he is still fighting the NHS for funding for the neurostimulator implant. The only chance I seem to have of permanent control of my pain, and therefore other symptoms.
So....the only choice now is a repeat of the last operation that I had; Pulsed Radio Frequency Rhizotomy and Local Anaesthetic Injection Into Muscle.

At least I know the recovery isn't awful and not too long BUT it still means my pain control will be temporary :( and so my life will still be controlled by ON.

On one hand I am feeling positive, as the last time I had this my pain was lowered like never before and for longer than anything else I have tried.
But on the other hand I can't keep waiting for things to wear off or run out and for me to be in extreme pain again! 

I guess only time will tell how long this procedure will last me for but I am almost certain that eventually it WILL end and I'll be back to square one once again!!! 


  1. Hang in there! Hopefully you will get longer relief this time.

    1. Thank you!
      Sorry it's taken me so long to reply. My phone wouldn't allow to do it.

  2. Don't think of it as waiting for it to wear off, think of it as a temporarty solution while you wait for the permanent one x

    1. I do try and stay positive and see things in a positive way but it's getting harder to do that the more time goes on!!